Web Media Business
We run the members-only web media ZENPE.mag, where we share all the information everyone wants to know.
While there is little information available and many difficult-to-find articles aimed at doctors on the internet, ZENPE.mag has a consulting doctor who is a leading researcher and doctor of this disease supervise the medical aspects and provides easy-to-understand explanations of the disease and hearing loss. We also provide the latest medical information, such as interviews with doctors and information on clinical trials. Because this is a disease with a small number of patients, we provide "real voices" such as the experiences and interviews of patients' families.
Education and proposal project
Aiming for "a future where people can make choices that suit them best," we will raise awareness and make requests, with a primary focus on domestic approval of treatment drugs.
Currently, both enlarged vestibular aqueduct and Pendred syndrome are intractable diseases for which no fundamental treatment has been established, and there are no available drugs. In addition to the unfortunate condition of a small number of patients, there are various hurdles to overcome in obtaining domestic approval for new drugs, so we will seek domestic approval for drugs, cooperate with medical and treatment research institutions, and make requests and proposals to various institutions. In addition, through our social gatherings, we will accumulate, organize, and analyze the issues and needs of patients' families in their social lives, and use this information to improve welfare services.
Event Business
Because we both suffer from the same disease, there are moments when we can understand each other.
We plan and provide various events such as face-to-face social gatherings, workshops, and online tea parties. Patients and their families can easily exchange information with each other through open chats for members only and regular Zoom tea parties. We also connect with people with this disease around the world, and aim to establish World ZENPE Day, which will be useful for treatment and research. We are preparing to plan events and send speakers to promote mutual understanding and compromise, considering the mental barriers between hearing and hearing-impaired people.
Art and Creative Business
Taking advantage of the strengths of being run by creators, professionals, and parents, they aim to turn difficult issues such as disabilities and welfare into something stylish.
We plan and sell original goods and data made from the perspective of creators and medical professionals that are "desirable" for patients and their families with this disease, as well as for those who are hearing impaired, through our online shop, contributing to improving the quality of life of patients and their families. We also plan and provide artwork in collaboration with various creators, experiences of self-expression without language, and art experiences that foster self-esteem by making hearing aids and cochlear implants "one of the charms of who I am."